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Before we even met for the first time in person our lives became intimately connected.After our first attempt at getting together to meet in person got postponed, I had to leave to go to New Jersey for the death of my second oldest brother.You telling me you almost died back in 2012 from getting the flu and spending 3 weeks in the hospital is something I always have in my mind when we get sick here at home.I think I take better care of my own health since I've met you. I don't think twice about ever being short of breath. BC: What are the hardest and best parts about my having CF? It hurts, it’s painful, it pretty much sucks, but I’m not afraid of it.I understand that you're not always okay and that you're going to have bad days, and it is also important for you to understand that sometimes I just don't understand what you go through and I can get frustrated with this. EE: What was your perception of CF before you met Brian and how has knowing Brian changed that perception? I had a vague understanding that it was a genetic disease that affected the lungs and that people living with CF didn’t live long.I guess what I'm trying to say is that perhaps communication is the most important part... So meeting Brian and learning about CF through him has really shaped my perception of CF.
But like they say, the heart wants what it wants and here I am, still by your side. How do you feel it affects decisions you make or feelings you have on a day-to-day basis? I thought it would, but it’s always been a part of our relationship so to me it’s normal. Your CF makes me realize that today is truly all we have.That realization, along with her sharing the same birthdate as my brother who had just passed, were just a few of the green flags that started to go up.Almost three years later, Marissa is now my very best friend, and the sharing the loss of my brother was only the first of several challenging and painful situations she has supported me through. I have always wondered, and not been able to ask, what it is like for friends and loved ones to be on the other side of living with CF?I met my girlfriend, Marissa, online in early 2013.There was a certain unique and immediate comfort in communicating through email, chat and eventually phone right from the beginning.